Empty Wheelchair

Dear Life,

Today, at a family party, I witnessed something that made my heart sing.  

An empty wheelchair. 

What does that mean to you?  
To me...it's a symbol of a person who is not confined to his physical limitations.  
His wheelchair is a necessity for movement and for mobility.
When it confines or restrains, an empty wheelchair means there are no limits.  It means he is included in all kinds of play...even in a tall treehouse!

NO LIMITS.

I want Kumaka to live his whole life that way....

LIMITLESS
BRAVE
COURAGEOUS
ABLE
STRONG
INQUISITIVE

Wheelz

Dear Life,


Facebook.
It can be a huge timesucker.
It can cause drama.
It can also be a blessing.
For me it falls into the blessing category.
(well it can be a timesucker...but we are working on that)
I have found Facebook a great way to keep in touch with friends.
I have also found some great people within the Spina Bifida community that have been a great support and have given my family  friendship and love.
Facebook opened up a whole new world in terms of the amount of people within the Spina Bifida community.
I have also seen some awesome things...
Such as this video:

So I started following this man...because I knew he would be a great example of the "you can do anything you put your mind to" mentality.
He also happens to have Spina Bifida.

Recently I asked Aaron to post a pic of himself wearing a green shirt to support Kumaka for his collage.
He did better.
He happened to come to California this weekend.

So he came to our house.
I KNOW!!!!!

Check out his ride.  Can you believe this?
AND....he tricked it out with hand controls himself!
SO impressed!

Sorry for the blurriness...I was so excited I wasn't being a very good photographer...but he put Kumaka in his trick chair.....SOOO cool!

Wheelies...with Wheelz!
I have one word...


RAD!!

 Wheelz with the boys....sorry honey..I was so excited I wasn't even paying attention to you and your closed eyes!

Me with the boys...

Talking to Wheelz....Kumaka really liked him and Aaron was laughing at our silly boy!

And then it was ON.....video games with his new friend....that is how Kumaka is bonding these days.  Pretty fun!





Knuckles!




I love that this impromptu meeting came about from some messages on Facebook.
And I love that Aaron is even more amazing in person than in his videos.
What a blessing to meet someone who is willing to give up some time in his schedule to hang with the boy in the giant green cast.


Love it.  We are still trying to get our collage to grow...send me your pics....I can't wait to see how many people we can get on it.  I'm going to print it when his cast comes off and frame it!

Going to stick my head under the covers...

Dear Life,

Today was one of those days...I'm going to stick my head under the covers....
And Pray that tomorrow is better.

Ok...it wasn't all bad.  I got to have a delicious breakfast with one of my dear friends to celebrate my birthday.  I got to snuggle with my little guy this afternoon.

 My kids did their homework today.

BUT....I started getting sick today.  WHICH STINKS.

And my sweet little boy who just happens to use a wheelchair full time told me very matter of factly "I am going to walk when I get bigger Mom!"  He's almost five...and he can't bear his own weight.  And the likelihood isn't great that he will walk.  And I am ok with that....I'm just not sure how to explain all of it to him.  I don't have to yet....but that time is coming.  So I'm going to stick my head under the covers....and wish I didn't have to.  Hey, a girl can live in denial once in awhile right?

From....A Mom of Boys!