I am so excited to share the next story. There are a few boys that are Kumaka's age that we feel very close to. Brendan is one of those boys...and actually our two boys have become best friends. (Not to mention that Brendan's mommy Stephanie is so dear to my heart.)
"Our son Brendan turned 5 in March. When I was 20
weeks pregnant, I went in for a routine ultrasound to find
out the sex of the baby. We had our 3 other children there
in the room with us when we were told that our baby boy
had spina bifida. The doctors gave us all of the worst-case
scenarios and told us that we had the option to terminate.
We never considered that as an option for even a second,
but honestly, I was in shock, and we were devastated, and
terrified. I worried about all the "what-ifs" and agonized
over what my little man would have to endure.
I also thought, "How could I
possibly care for all of his
needs and still be able to be a
good mommy and wife." I
spent all my time scouring the
internet for information, and
stumbled upon a group of
fabulous parents who had
been there and done that, with
regards to Spina Bifida.
Suddenly, I had become part of this family that I hadn't
known existed and they became my life-line, my support,
and some of my dearest friends. ♥
Fast forward 5 years, and I am constantly in awe of this
amazing kid that we have been blessed with! He is so
much fun, incredibly smart and such a charmer!
and every person he meets is
his new best friend. He loves
motorcycles, the color orange, star
wars and legos. Currently, his
favorite sport is crushing the little
black beetles in the front yard with
his arm crutches.
He is strong
His motto is:
"I can do hard things!"
He proves this daily
as he accomplishes all
those things the doctors said he'd
My advice for future parents of children with SB.... take a
deep breath- you CAN do this!
Pregnancy was the hardest part
for me because I wanted definite
answers and the doctors could
only guess. I look back on all of
the time I wasted worrying
about things out of my control.
Yes, we've faced a few hurdles
and weathered a few surgeries
and hospital stays, but I
wouldn't trade my little man for
Your life, your family's lives, and the lives of every one
your child comes into contact with will be richly blessed!
And remember, you aren't alone on your journey...
your SB family will be with you, supporting you, the whole