My next feature is a sweet little girl that I adore. I met her adorable mom a couple of years ago after hearing about her blog. I stalked her until she became my friend. I really look up to her, Sarah works so hard to make sure Katie does everything...even when it's hard. She makes it look easy...even when it's not. Katie is such a sweet, adorable little girl. Kumaka loves her. This family has been incredibly supportive of our journey...and Sarah has been so supportive as me as a mother...and as a woman. I am blessed to have this family in my life.
"Katie is nine years old.
My husband and I wanted to celebrate our Valentines day
at our 20 week ultrasound finding out if we were having a
boy or a girl. We had plans to have dinner afterwards to
celebrate the news that our first born would be a daughter!
We started to notice the tech taking a long time on the
ultrasound, was acting strange, and not answering any
of my questions. It left us unsettled, but made sense when
I got a phone call the next day from our OB asking us to
come in for further testing. When we finally got another
appointment, we heard all sorts of things; ranging from
Down Syndrome to our baby might die at birth. Finally we
had the level 2 ultrasound and the radiologist told us our
baby would be born with Spina Bifida. It was almost a
relief after all the things they had told us originally.
Almost. I felt emotions from extreme lows (feeling like I
was just kicked in the stomach) to the most overwhelming
feelings of peace and comfort. However, at one point
during the appointment, I asked to be excused and went
into the restroom where I just stood there alone, trying
to take it all in. I had to take a moment and get in control
of the situation because the doctors were pressuring me to
get an amniocentesis and they wanted us to fly to
Sacramento for a new study/surgery; not to mention the
fact that they uttered the dreaded "A" word. I needed to
gather my thoughts and say a prayer and let the Lord
First off, I knew I was going to keep my baby, no
matter what so I shot that "A" word option down real fast.
Second, I was going to do the amnio because I felt
pressure to, but after talking it over with Bryant, we both
felt like there was no need to do that, so we declined that
test as well.
just did not feel
right at all. So we
went with how we
were feeling and
passed on that too.
When we got home
on that rainy day,
we sat in our
apartment and just took it in and did a
paradigm shift...this would be our new life. We would be
parents to a special needs baby.
Looking back now, I
always say I wish I
could have just seen a
quick snapshot of
our life today! I
would have enjoyed
my pregnancy more
and would have
welcomed this new
life with open arms and pushed those fears away.
How do you put into
words this challenging,
The one thing that I never
thought I would see Katie enjoy
is the beach.
the most. How
would we do the
beach? Well, we do
it, and we do it well.
This past summer,
we went to the beach
almost daily! We
learned to adapt and
that is how we do
lots of fun things...
the adaptive way!
my daughter ski,
race in a 5K, play
be on a TV show,
surf with Life Rolls
On, win Miss
get perfect scores on
tests at school, and I have seen her smile and laugh EVERY
SINGLE DAY...and that above all is the most important
thing. She is happy and that is all I could have ever asked
or prayed for. She is happy.
What I want to say to future parents:
Welcome to this beautiful life. A life not all
get to experience. A life where patience is
tested but where miracles are witnessed and
strength is gained. Welcome!"