Sunday, October 30, 2011

Colds and Thank You's

Dear Life,

I am not a fan of the cold you brought me.  You were so NOT kind to bring it to half my family too!!!  I'm afraid it won't go away for weeks.....we all know how colds get around in big families...and the worst part is it started with my teenage son...and then my husband....and you girls ALL KNOW what it's like when the menfolk get colds...



I'm not quite sure WHY men turn into the BIGGEST babies when they are sick.....Now we need to have stock in KLEENEX cause they are flying around the house....



On another note....I have almost all of the lists from my kids of who they are going to write their thank you's to in November.  It's so interesting to see who they value in their lives.  They are pretty lucky that we have a big family.....so they can pick and choose from a wide variety of people right within their uncles, aunty's, and siblings.  But after that it's a great mix of doctors, friends, and church leaders.  I'm proud of my kiddos.  :)

Thank you....From a Mom of Boys!!!

Friday, October 28, 2011

Good think I took my head out of the covers......

Dear Life,






Normally I keep Kumaka's Spina Bifida stuff on his caringbridge......but today was too good to keep in one spot....so forgive the double post.....





Dear Spina Bifida,

You roared into our life 5 years ago....you threatenedus, and our unborn son.  You made us feel smalluneducated, and oh so scared.  You made us question so many things, and wonder how we could go on this journey.  You thought you were sofierce.

I am here to tell you that although you try to do your best to wreak havoc, you underestimated one thing.
   The spirit of the boy.  
You may try to ravage his body, but his spirit remains.  His smiles, his laughs, his joy, you can never ever take from him.  
His legs may be weak, and they may not obey his commands....
But he has strength inside that you can never compete with.  He takes challenges head on....he told me he would walk when he got big.








  HE WALKED TODAY!!!!
He happily strapped into his Forrest Gump looking RGO, locked in, stood up, and was AMAZED at himself in the mirror....standing there alone.....STANDING....
He was so happy to be tall...and to move side to side WITHOUT ASSITANCE and take a few steps.  They weren't big...and it wasn't easy....BUT YOU DID NOT WIN!!!!!  HE WON!
He will not take no for an answer.  He will do what he wants to do.  AND HE WILL ENJOY IT EVERY STEP OF THE WAY.

We have wasted days and days being sad....we plan on looking forward with bated breath as we watch what he CAN AND WILL DO.....so....go crawl away.....because we are not afraid anymore.

From....A Mom of Boys!

Wednesday, October 26, 2011

Going to stick my head under the covers...

Dear Life,

Today was one of those days...I'm going to stick my head under the covers....
And Pray that tomorrow is better.


Ok...it wasn't all bad.  I got to have a delicious breakfast with one of my dear friends to celebrate my birthday.  I got to snuggle with my little guy this afternoon.



 My kids did their homework today.


BUT....I started getting sick today.  WHICH STINKS.

And my sweet little boy who just happens to use a wheelchair full time told me very matter of factly "I am going to walk when I get bigger Mom!"  He's almost five...and he can't bear his own weight.  And the likelihood isn't great that he will walk.  And I am ok with that....I'm just not sure how to explain all of it to him.  I don't have to yet....but that time is coming.  So I'm going to stick my head under the covers....and wish I didn't have to.  Hey, a girl can live in denial once in awhile right?

From....A Mom of Boys!

Monday, October 24, 2011

Gifts, talents, and experience

Dear Life,

Thank you for giving us so much experience...good, bad or ugly....experience is so important.  Now to be able to use that experience to benefit others...to help others...that is how the world should work right?

Let me start by saying that I truly believe that God gives us all gifts and talents...and it is up to us to realize them and help them grow and multiply.


As a mom I have really struggled wanting to help my children "discover" their gifts or talents and try to point them in the right direction.  Of course that is a catch 22, because children don't EVER want to do what their parents think is right.  So I've learned after stubborn child number one to change my approach.  I now just suggest gently...point in different directions....and let them make their own choices.  Ultimately I just want them to know that I think they are special...and so does God!


Now I think I've figured out how to help my kids....I'm trying to figure out how to help myself.  My family lives in California...and I have been a stay at home mom for a long time.  There are seven of us, and it's not getting any cheaper to live here.  But it's rather impossible to get a full time job out of the home for two reasons: I want to be there for my kids and my youngest has Spina Bifida and has medical needs that I provide.  (Not to mention if  he ever is hospitalized for any length of time....having a full time job would make it very difficult to be with him)

Ok...look at that face.....how hard is it to leave him....SOOOOO HARD!!!!  So that got me thinking.   A LOT!


What on earth can I do from home that will allow me to make money to help my husband help our family.  I looked at some different things, checked out a few articles on Forbes about which careers are fast rising and the most stable.


No I didn't get a degree when I should have long long ago (Note to self....make sure my kids know and understand the value of that college degree) and honestly I'm not sure if I have the time to get one right now.  As I read different articles, some thing started being a common subject...the health care industry.  Because people are living longer, the need for health care professionals is even greater.  But there are new careers that are coming out of this and one of them caught my eye.

PATIENT ADVOCACY


I happen to have personal knowledge in this area...because there have been times I have needed such a person and there was no one.  There have also been times people have advocated for us.  This really got me thinking.  I searched the internet long and hard...what do you have to know to do this?? Well...turns out this is so new there isn't a common practice..there are no certificates or degrees in this.  Suggested courses and degrees but nothing in stone.  So I put this out there on my support group on Facebook.  (Gotta love Facebook)  One of my friends told me about a career she is looking into...that has a direct link to how she has to care for her son and his medical needs.  So it's not like she or I have a GIFT.....but we have been given circumstances.  It's up to us to learn the most and share our knowledge and in return we can help not only our families financially but other families dealing with similar situations.



So life....thank you for experiences...and talents....and gifts...hopefully I can put this all together and create something wonderful!

From...A Mom of Boys!!!!

Sunday, October 23, 2011

November.....a month of Thank You's

Dear Life,

Thank you for books.  There are great books out there.  I love all kinds, fiction, non-fiction, historical fiction, scriptures, etc etc.  Recently I read "Not My Type" by a very cool author friend...Melanie Jacobson.  (She is hilarious....check out her two books....you will read them in no time flat...and LAUGH THE WHOLE TIME!)






 The main character Pepper is having some serious issues....and being a whole lotta negative.  She is an adult, but lives with her parents (you'll have to read the book to find out why).  Her father, who happens to be a family counselor, tell her that she will either be writing a thank you letter a week for a YEAR or she will have to move out on her own.  I loved that as she wrote her letters, things changed for her...mostly within herself!  So I am challenging myself to write a thank you card a day for the month of November.  One reason is that I am HORRIBLE at writing thank you cards so it might be the beginning of a good habit.  Another is that I need to be more thankful....and climb out of the pity party ride I find myself on occasionally. I also want to teach my kids a good lesson about being thankful and not taking things for granted and stop feeling entitled.  So in this last week of October I will be getting together some cards and then prepare them...so all we will have to do is write them.  :)  Good luck right? Want to join me?



Yes...I wrote that I was going to do purposeful acts of kindness...but I want to do THAT in December.....Thanks First!

I hope you all have a great week.  Share my blog will you?  And I love followers....not the creepy kind of course.

Thanks life for books...and great ideas...even if they aren't mine!

From...A Mom of Boys!

Saturday, October 22, 2011

Modern Medicine amazes me

Dear Life,

I have to thank you right now for modern medicine....and the continued advancements being made.  Because of a yearly mammogram (have you had yours done yet?) three weeks ago, my grandmother was diagnosed with breast cancer.  They told her she had a very small lump.

She saw the specialist, who told her it was stage one.  All of her health care professionals are amazed they found it....it was that small.  Yesterday, she had outpatient surgery, they took out the lump and she went home virtually painlessly.  The prep was more of a pain than the procedure.  Thank you modern medicine for making things so easy.  The reason it was so small is because she has yearly mammograms.  (Guess I need to make my appointment...just turned forty after all!)

The other reason modern medicine amazes me is because I have a son with Spina Bifida.  He is four and he is amazing!  Isn't he cute?  You can learn more about him here:  www.caringbridge.org/visit/kumakajensen
Without a shunt to redirect the excessive fluid in his brain he probably wouldn't be here.  Without a surgery at birth to close the lesion on his back he definitely wouldn't be here.

I am so grateful to those scientists and doctors who are smart enough to make discoveries, to find cures, to create surgeries and procedures to correct things and make life easier...and possible.  Sometimes I get mad at doctors because I don't like what they have to say.  But the good ones, the ones who care, they rock my world!  Thank you life, for giving us these amazing people.  They make life better daily!

From.....A Mom of Boys!!

Thursday, October 20, 2011

30 Days of Intentional Acts of Kindness

Dear Life,

As October winds down and November approaches, I find myself in a mood to be even more thankful, and I saw this amazing idea from Pinterest....

http://www.icanteachmychild.com/2011/10/coming-in-november-30-days-of-intentional-acts-of-kindness-with-your-kids/

You've all heard of random acts of kindness?  This mom has decided to teach her kids the value of INTENTIONAL acts of kindness.  The whole month of November.

http://www.ablemuse.com/v6/poetry-translation/geoffrey-brock/pascoli-november




I think it's a great idea.......so I'm going to adopt it.  Check it out...what a revolution we could all make if we do it with our families, friends and loved ones.  Feel free to post any results from your November Kindness Acts....I will post mine!

So life, thank you for giving us the opportunity to show kindness....I can't wait!

Wednesday, October 19, 2011

A Proud Moment....and then a sad boy :(

Dear Life,

Thank you for today.  Today was an amazingly wonderful day.  The very first memory that I never want to forget is that of my four year old hearing me blast music so I can clean my house and racing to me wanting to dance.  I of course put out my arms, he slipped his adorable little arms around my neck and we danced cheek to cheek.  There is always housework....there will not always be sweet little arms around my neck.
I don't ever ever want to forget how fast he scurried when he heard the music....as he climbed up in my lap I thought...well there goes the laundry....and the joy when cheek to cheek we moved back and forth to the music.  He is my baby....what I wouldn't do to keep him small.

The second thing that was amazingly wonderful was...drumroll please.....after 7 years of scouting, our oldest son is officially an Eagle Scout.  What an honor and privilege it is to say that.  I am so proud of him...it is a very long road to haul and he has had his moments of ambivalence towards it.  The men on the board that interviewed him were so kind, and said really amazing things about him.  I hope he realizes what an amazing young man he is and what an amazing accomplishment this is.  Yay Keoni!


The sad part is that my freshman sang in his first choir perfomance....and we were unable to attend....because of the Board of Review.  He came home devastated.  Which put a damper on the good mood we were feeling.  I thought he understood....but he didn't.  And mama angst was going full force.  But a little later he came to me and we talked.  I apologized and told him how much I wanted to be there and if it wasn't such a monumental event I would have been there.  He forgave me....after much pleading and begging.  Oh yeah....and I promised him a one on one date.  So, thanks life for such an amazing day.  And thanks for the principle of forgiveness and the promise of a date with my boy.

Tuesday, October 18, 2011

Thanks for another year...

Dear Life,

I have to say I wasn't ready for last week.  I turned the big 4-0.  Forty.  Part of me wanted a crown to shout my birthday to the world.

http://pinterest.com/pin/273701473/

Of course, I didn't.  That was probably because I live in a house of boys...and no one thought to get one for me.  But that's ok.  It's strange to think about being forty because in my head I'm still twenty something.  I'm funny...in my head....(cause you know my kids think I have NO sense of humor whatsoever) and I love girly fun things and I enjoy hanging out with my son's friends (much to his chagrin).


And of course in my head I still look like I'm in my twenties....until I go shopping....and realize I'm not.  Let's just say these hips don't lie....five kids changed all kinds of things. But I also have some wisdom that I didn't have in my twenties.  I realize the importance of faith, and forgiveness. I have learned that life isn't a magical fairytale...and that's OK.  Life can throw some really interesting curveballs, but we can grow from every experience, good or bad.  It's OK to be sad but it's a waste of time to dwell on difficulties.  It's much more productive and satisfying to come up with solutions to life's problems than it is to complain about them.  I've learned to love always and a lot, and to pray always and a lot.
http://pinterest.com/pin/204839390/

Thanks life, I guess forty isn't so bad....and I'm always younger in my head anyway!

Monday, October 17, 2011

A Letter About Life

Dear Life,

When I was younger I didn't think I would ever get married. Because my own mother married three times, I didn't WANT to be married. It was obviously overrated. But miraculously, I met a wonderful man and did indeed get married. Over the years our family has grown, boy after boy, until we have a grand total of five boys. Two are in high school, one is in junior high, one is in elementary school and one is in preschool. I love my boys (and my husband) more than life itself. I thank God every day that He has chosen me to be their mother. But in the next breath I often question His wisdom. I was a great mom to one boy; we went to the park, I read to him daily, we went on weekly excursions together. Three years later, boy number two came and I loved having my two little boys. Our little family of four could be seen at Disneyland, the movies, the mall shopping or hanging out at home. We had a great time. When boy number three came along, I started getting overwhelmed. Lucky for me this young man is easygoing and loves me no matter what. He is just like his Dad, patient, understanding, and giving. God knew I needed help I think. Two years later a fourth boy came and I though I had it under control. These boys kept me busy, but I really really enjoyed them. We started having to learn how to deal with school districts, IEP's for language and speech, ADD, and homework. Oh the homework. The bane of my existence. Just as I thought I was getting it, I finally was figuring out how to be a good mom again; taking the boys to the pool, the library, putting them in soccer and swimming; I had my last boy. He is a blessing to our family. He is an angel here on earth. I can't imagine my life without him. He was born with Spina Bifida, two severely clubbed feet, hydrocephalus, and the biggest personality you could find on a four year old. This boy has been through more than all of us put together and then some. He does it all with a sweet smile and sometimes a little bit of a funny attitude. Nothing stops him. But recently I feel like everything stops me. Between helping my high school senior figure out his next steps, watching my freshman get his feet wet in high school, viewing my junior high boy successfully juggle the jungle of preteen hormones, helping my little 9 year old not get lost in the shuffle, and managing major health issues of my youngest, I am tired. Weary. And curious. How did I get this lot? I'm not complaining, believe me. But am I really the woman to do this...and do it well? My sweet husband has to really deal with a sometimes grumpy, not very organized, mess of a wife. I mean well, and I have great ideas. But most of the time I am too exhausted to actually make things happen. I feel like I am watching my life unfold from the sidelines. How do I get up and participate? I have never felt so much love from so many people in one house, nor have I felt so much frustration. I am at the point of losing control....at times I wonder if I've done enough, loved enough, cared enough (or possibly too much) and hugged enough. I love them all with every fiber of my being. Do they know that? Does my husband know how much I adore him? I am lucky....and exhausted. I am loved and I love....but is it enough? How am I doing I wonder and how will it all turn out? Will my kids look back and blame me for their quirky behavior like I do my own mom? I truly had no idea I would be a wife, mother to five, a chauffeur, a nurse, an advocate, a crafter, a banker, a lover, a fighter, and more sleep deprived than humanly possible. I didn't know I would be capable of loving this deep and fighting this hard. I just hope that my family knows that this life is hard, but oh so worth it. That I am grateful for all of this...even the deep dark circles under my eyes and pounding headache. I am amazed....I had no idea that this is what life was about. Thanks life, thanks for everything. And please remind my husband that I love him...he's sleeping right now.